National Organizations
National Down Syndrome Congress
National Down Syndrome Society
National Assoc. for Down Syndrome
International Mosaic Down Syndrome Assoc.
Comprehensive Web Sites
Down Syndrome: WWW Page
Riverbend Down Syndrome Parent Support Group
Down Syndrome Information Network
Sara G’s “Being Into Down Syndrome” Page
Uno Mas! (Temecula Valley DS Group)
Downscity Homepage
U.S. Local Organizations
Northeast
Aim High! (Albany, NY)
Bringing Up Down Syndrome (Southern NJ)
Connecticut Down Syndrome Congress
Down Syndrome Parent Network (E. Penn)
Down Syndrome Support of Genesee County (NY)
Down Syndrome Society of Rhode Island
Massachusetts DS Congress
Trisomy 21 of Northern New York
Southeast
DS Assoc. of Atlanta
Down Syndrome Assoc.of Middle Tennessee
Down Syndrome Assoc. of New Orleans
DS Family and Friends (Little Rock, AR)
Down Syndrome of Louisville, KY
Gold Coast Org. of Palm Beach County, FL
Lindsey Rae Foundation (Broward)
Parents of Children with DS (PODS) of N. Virginia
Piedmont DS Support Network (N Carolina)
Triangle Down Syndrome Network (N Carolina)
Up With Downs (Shreveport, LA)
Middle
Down Syndrome Assoc. of Central Ohio
Down Syndrome Assoc. of Central Oklahoma
Down Syndrome Development Counsel (N. Illinois)
Down Syndrome Assoc. of Greater Cincinnati
Down Syndrome Assoc. of Minnesota
Down Syndrome Assoc. of West Michigan
Down Syndrome Assoc. of Wisconsin
F.E.D.S. (Sterling Heights, Mich)
Indiana DS Foundation (Indianapolis)
Miami Valley Down Syndrome Assoc. (Dayton, OH)
Oshkosh Down Syndrome Parent Support Group
Riverbend DS Parent Support Group (SW Illinois)
The Up Side of Downs of Greater Cleveland
Up With Down (Des Moines)?
Wichita Downs Support Group
West & Southwest
Down Syndrome Assoc. of Houston
Down Syndrome Assoc. of Los Angeles
Down Syndrome Connection of Tucson
Down Syndrome Exchange, Southern CA
Down Syndrome Guild of Dallas
Down Syndrome League of the Greater Bay Area
DS Network (Phoenix, AZ)
Down Syndrome Organization of Southern Nevada
Down Syndrome Partnership of Tarrant County (Ft. Worth)
Down Syndrome Support Group of the High Desert
Down Syndrome Assoc of Ventura County (CA)
PROUD (Orange County, Cal.)
Sharing Down Syndrome Arizona
Rocky Mountain/Northwest
Colorado Springs Down Syndrome Assoc.
Down Syndrome Outreach of Whatcom County (WA)
Mile High Down Syndrome Assoc. (Denver area)
Upside! (Wash.)
Utah Down Syndrome Foundation
Intercontinental US
Alaska Chapter of the NDSC
Online Magazines and Newsletters
Down Syndrome Quarterly (a multi-disciplinary journal)
Disability Solutions
Down Syndrome Amongst Us
Medical Resources
Medical Descriptions of DS
A description of Down Syndrome characteristics by Dr. Siegfried M. Pueschel
Online Mendelian Inheritance in Man (OMIM) Page on DS (a medical description)
General Health Guidelines
Health Care Guidelines for People with DS
Spanish Edition of DSMIG Guidelines
Down Syndrome: Health Issues, from Dr. Len Leshin
Genetics of DS
Dr. Korenberg’s Chromosome 21 Phenotype Mapping Project
Eleanor Roosevelt Institute: Sequencing the 21st Chromosome
Online Mendelian Inheritance in Man (OMIM) Gene Map of chromosome 21
Risk and Recurrence of Down Syndrome by Dr. Paul Benke
What is Mosaic Down Syndrome? by Carol Strom
Animations of Meiosis and Fertilization
Specific Medical Topics in DS
Center for Motor Behavior in Down Syndrome
Dental Care in Down Syndrome: A Review of the Literature by Sindoor Desai, DDS
Down Syndrome & Autistic-Spectrum Disorder
Down’s Heart Group
Growth Charts for Children with Down Syndrome
Menstrual Management in Down Syndrome
Hip Instability in Down Syndrome by Kim Voss
Alzheimer’s in DS by Dr. Ira Lott
My Brother and Me: about Down Syndrome and Alzheimer’s
Other Resources for Parents
Breastfeeding and Down Syndrome, by the La Leche organization
Communicating Partners, Dr. James McDonald’s program
Diagnosis: Down Syndrome (a collection of stories for new parents of children with DS)
Down Syndrome - For New Parents (by The Paul Family)
Love and Learn Tapes for Teaching Reading
National Down Syndrome Education and Research Institute
Parents’ Resource - For new parents (by the Edwards Family)
Welcome to Holland, by Emily P. Kingsley
Welcoming New Babies, by Pam Wilson
Other Great Sites
Adult Artists with DS
Chris Burke Fan Club Website
Sujeet Desai: Pianist Extraordinaire
Michael Jurogue Johnson: a painter and illustrator with DS
Raymond Hu’s Website: his story and paintings
Erik David Behnke: An Alaskan Artist
Jane Cameron, Sunshine Girl
The Marketplace
“Beautiful Faces” Calendars and Note Cards
Sign Language Rebus Books for Children with Special Needs
TLC Kids Company: educational materials for children with disabilties
Special Fit Online: Clothes for adults with DS
Time2Read is educational Internet software
|
